CROATIA – ELPA – European Liver Patients Association

0


Tatjana Reic
Croatian Association for the Liver Diseases „Hepatos“
Hrvatsko društvo za bolesti jetre “Hepatos“ 

Office Address:

Doverska 29, 21 000 Split, CroatiaTelephone: +3852145 99 88Fax: +3852145 99 89 GSM: +385 98 9032487

Email: [email protected]

 

Counsil Address:

Fra Bone Razmilovica 11, 21 000 Split, CroatiaTelephone: +38521322888Free info telephone: 0800 400 405 

http://www.hepatos.hr

 

OUR MISSION:

Hepatos is a Croatian association of treated and ill with hepatitis with local, national and international activity, seated in Split. The goal of Hepatos is to prevent occurence and spreading of the disease, reduce discrimination and improve the quality of life of the ill and their family members, by following high standards of action.Hepatos, as a unique spot in the Republic of Croatia, informs, educates, publicly advocates and provides professional consulting and psychological support. 

OUR MOST IMPORTANT ACHIEVEMENTS:

The most significant improvements in availability and quality of treatment that have been realized since 2003 are largely owed to self-organizing of the ill under the leadership of Hepatos:

  • During 2005 a new group of the ill became eligible for treatment, and the treatment guidelines for hepatitis C have been changed 3 times.
  • In 2007, a crucial step has been made in the prevention of infection with hepatitis B by introducing vaccination of all newborns.
  • In March 2007, the Croatian Institute for Health Insurance finally granted free treatment with the “gold standard” to all ill with hepatitis C, regardless of their genotypes, paid by the Fund for expensive drugs.
  • In May 2008, Hepatos sent 12 requests to the Croatian government, asking them to support the global initiative for putting viral hepatitis under control and improvement of status of the ill with that disease.
  • In April 2008, Hepatos organized a round table titled “Initiation of creation of the National strategy for fight against viral hepatitis”
  • In May 2009, the Croatian parliament adopted the Resolution on fight against viral hepatitis.
  • It was preceded by a thematic session of the Board for Health and Social Welfare on 13th March 2009, during which the proposal of the Resolution was adopted, which was then sent to the government for disclosure and to the parliament for adoption. The president of Hepatos, mr.sc. Tatjana Reić, participated in the discussion during this preparatory session as a representative of Hepatos and SOH (Croatian Alliance of Hepatitis Patients), that were the first organizations to request adoption of such a document, back on 26th February 2008.
  • In collaboration with the Croatian Society of Infectious Diseases, Hepatos organized the first presentation of the FibrScan® machine in Croatia.
  • In 2010, the Croatian Institute for Health Insurance included 2 new drugs for chronic hepatitis B (pegylated interferon and nucleoside analogue – Sebivo) in the list of expensive drugs, after 5 years of persistent advocacy of the Association and the professional community.

 By its participation in the work of ELPA, Hepatos also participated in adoption of the WHO Resolution on viral hepatitis (WHA63.R18), on 21st May 2010.  Based on the 2-year contract for collaboration with the Republic of Croatia for 2010 and 2011, the WHO designated Hepatos as the National Focal Point for Hepatitis C. Recently, Hepatos has been designated as the National Focal point for Hepatitis C for 2012 and 2013.